I know I have mentioned that my wife has taken care of a sweet little girl for the last couple of years. (Home health care setting) She unexpectedly passed away a couple days back, my wife on duty. It is simply tragic. While I know this little girl mostly through the eyes of my wife, I am tore up right now. I can’t even comprehend how the family is taking this.
My wife worked her case when she was an infant, no one really knew yet if anyone was even home at that time, she being non verbal, frail, and living on a ventilator 24/7. But when the wife got another chance to work the case, (nurses get shuffled around,) by this time it was indeed known that not only was somebody home, she was very smart. She learned to sign by 3 years old, and understood both Spanish and English by 4. She was uncannily bright and mature for her age and carried a great sense of humor beyond her years. My wife referred to her as a little Steven Hawking, she was that intelligent. She was only recently starting to vocalize a few words and had begun going to school. A frail little girl stuck in a wheelchair, on a vent, multiple heart surgeries, and nary a sign that she felt disabled in any way, a true fighter with a personality one can only hope to find a few times during the course of our lives.
She had to have heart surgery not too long ago, and had a case of pneumonia of recent. The last couple of weeks her heart rate was fluctuating wildly and her sats (oxygen levels) were up and down as well. The family threw her in the van at least 3 times and travelled the 2 1/2 hour ride to the best H in the state, Vanderbilt, in that time. No one could really identify what the issue was and she was sent home on each occaision. Looking back now, I as a mere bystander can only surmise that her little heart was was trying to tell us that it was failing.
A life ended far too soon, a little girl I wanted to know and see grow up, she touched every single person who knew her. Every life is special, every child of innocence a treasure. This child was a blazing sun among a sea of ordinary stars, and none can fill the void she has left behind. My wife and I mourn for the family, and the life of a little girl who indeed touched us all.
A blog, can be a window. I do hope that peering into this one today, gives you some appreciation for making the most of what you have got. Tomorrow is no guarantee…